top of page
Image by Luca Micheli

Paris Conference 2026

September 25-27, 2026  |   Paris, France

Paris Marriott Rive Gauche

Bridge with Gargoyles

Join us for our first in-person conference featuring expert-led sessions, registry insights, and meaningful community connection.

The 2026 KCNH1 Family & Professional Conference is hosted by Cure KCNH1 Foundation and provides a unique opportunity for patients and families, scientists and doctors, and industry partners to come together to learn, connect, and share experiences and strategies to enhance the lives of those affected by KCNH1-Related Disorders.​

​​​​

While we are close to finalizing venue details and room rates, we recommend that families plan to arrive by Friday afternoon so you can unwind and connect with other families at our evening social.

​

Registration Link Coming Soon!

Conference Agenda*

*Please Note: This is a tentative schedule and is subject to change. Check back regularly for updates as we finalize our speakers and sessions!

Image by Timelab

STAY TUNED

Check back here for more updates

Page last updated: May 22

Contact Us

info@curekcnh1.org
619-742-0013

  • Instagram
  • Facebook
  • Twitter
  • LinkedIn
  • YouTube

We're always looking for support for our mission. 
Let's connect!

CURE KCNH1 FOUNDATION is a registered nonprofit organization, EIN# 87-2041980

bottom of page