Cure KCNH1 Family and Professional Conference 2026
September 25-27, 2026 | Paris, France
Paris Marriott Rive Gauche
Join us for our first in-person conference featuring expert-led sessions, registry insights, and meaningful community connection.
The 2026 KCNH1 Family & Professional Conference is hosted by Cure KCNH1 Foundation and provides a unique opportunity for patients and families, scientists and doctors, and industry partners to come together to learn, connect, and share experiences and strategies to enhance the lives of those affected by KCNH1-Related Disorders.
Conference Agenda
Time
9:00 AM
9:10AM
10:30AM
11:15 AM
12:00PM
1:00PM
1:30PM
2:15PM
2:45PM
4:00PM
6:30PM
Event
Welcome/Opening Remarks
Michaelle Jinnette
Introduction to Genetics and Treatment Approaches for KCNH1
Ali Rosenberg
Fundraising for KCNH1 Research
Breanne Dollar
"Birds of a Feather" Breakout Groups
Language/Age-based Discussion Groups
Lunch
Q&A with Dr. Price Tipping, Neurologist and KCNH1 Dad
Price Tipping
Registry Results and Next Steps
Malin Zaddach and Leonie Nicolai
Oral and Dental Manifestations of KCNH1-Related Disorders
Nhat Minh Do
Research Participation Opportunity
Cure KCNH1 Team
Community-Building Activity
Neighborhood Scavenger Hunt
Community Dinner
Agenda subject to change
While we hope you'll consider staying at the conference hotel if possible (many of the most important connections happen outside the sessions!), we understand that cost is an important consideration. To help make the conference accessible to everyone, we've compiled a list of budget-friendly lodging options nearby.
Thank you to our sponsors!
