We are so incredibly touched that Jonathan and Elena have chosen to support our foundation on their special day!  Our youngest son Tristan was born with an ultra-rare genetic mutation that causes a devastating neurological disorder, but thankfully there is hope, we live in a time when life-changing and historic gene therapies are within reach.  As soon as Tristan was diagnosed we gathered a scientific team from around the world, created a foundation, and started fundraising to develop a cure.  Cure KCNH1 Foundation is now working with local San Diego biotech companies and national and international organizations and researchers to develop cutting-edge treatments that can help not only Tristan and the other KCNH1 kids, but millions of other rare-disease patients.  Please watch the video or visit our homepage to learn more about our story, and thank you so much for making a difference in the lives of these severely-disabled kids!​​